CATEGORIES

CONTRIBUTORS

Adventures in being sick, getting better, staying well.

ARCHIVES

M T W T F S S
 12
3456789
10111213141516
17181920212223
24252627282930

Spring Brings New Feelings of Life, Especially to a Cancer Patient

By Jason Carpenter | April 29, 2008

Jasonbmw
It was a great day.

I woke up and my body didn’t ache from head to toe. I don’t really know why, I just felt better. Yes, I was stiff. Yes, I was sore. But when I planted my feet on the floor, the pain didn’t travel up my legs and pinch my lower back. It was more like the ordinary soreness you get a day or two after you’ve really worked your body hard.

Not only was the pain low, but the sun also made a glowing white halo around the blinds that shade my bedroom window. Weather clock said 54 degrees: Not Tahiti, but 54 and sunny at 8 a.m. in April meant a day headed for at least the 70s. And that meant top down on my new (used) convertible.

After scrubbing up in the bathroom and acquiring new minty breath, I thought about how good I felt. Good begets good; all the factors seemed to be playing in my favor, from the sun and warmth to tolerable pain and the anticipation of wind in my hair (uh, my stubbly, post-chemo hair). I was conspiring to have a very good day.

Read More


How to Keep From Pulling Your Hair Out

By Jason Carpenter | April 22, 2008


I actually thought I was going to be spared the whole hair-loss thing when, after two weeks of my first chemo treatment, my full, thick head of jet-black hair (with a sprinkling of gray) was intact. Even when I found hair in hats, shower drains, and bed sheets, the loss seemed modest.

Then I began pulling it out.

I have discussed this with my father and he said, "I just can’t figure it out. If I knew I was going to lose my hair, why would I want to pull it out?"

But my hair had become brittle, the consistency of straw, and I felt a strong urge to pull. Why? Just because.

More deeply, I pulled it out because I could, because there was a kind of morbid entertainment value in yanking it out in what was a generally joyless situation.

By the time you get to the point where your hair is falling out, you’ve already gone through a lot of treatment. Assuming early detection, you’ve had months of medication, treatment and time off from work (in my case, six months). You’ve spent a lot of time in the hospital or home alone, thinking about your condition and treatment. Enter the morbid fascination.

Read More


Chemotherapy Has Turned Me Into a Bloodhound

By Jason Carpenter | April 8, 2008

When one of the doctors offhandedly mentioned that my sense of taste or smell could be affected by the high-dose chemotherapy treatments I was getting in my battle against multiple myeloma, I didn’t pay much attention. Not until I found I could detect the slightest whiff of anything from 20 feet. Not until anything I put in my mouth had a taste so intense that I vomited every meal for two weeks.

It was a horrible cycle that I could not break: When a meal came back up, it smelled awful and made me puke more. My mom, who spent some time at the hospital with me and at my house after I was discharged, developed a two-puke-pan routine: She would remove one pan on my command, then slip another one under me so I didn’t have to endure the output.

Read More


My Immune System Confronts a Virus

By Jason Carpenter | April 1, 2008

Fampic2webAs I reached Day 21 of my stem cell transplant, my recovery hit a very scary wall. I woke up with a fever of 102 and could barely lift my head off my pillow. I felt that little tingle in the back of my throat and knew right away what it was: the common cold.

For a stem-cell-transplant patient, though, a cold is anything but common. Quoth the International Myeloma Foundation: “Even a minor infection…can lead to serious problems because the body’s immune system is so weakened by the effects of the high-dose chemotherapy and the loss of blood cells.”

Translation: I could die.

Read More


My Stem-Cell Transplant Was a Success and I’m Out of the Hospital

By Jason Carpenter | March 17, 2008

JasoncarpentarIt appears right now that I have successfully beaten cancer and can look forward to a lengthy remission. My eyes well up as I write this because it has been such a battle. How long will the remission last? It looks like at least three years, and the upper end has no ceiling. There are a couple of cases out of my hospital of younger folks like me going into remission for 10 to 15 years. But these people are certainly the exception to the rule. So I’m just going to enjoy the remission and not question how long it might last.

My doctors say I made one of the quickest recoveries in the history of the bone-marrow transplant ward at New York–Presbyterian Hospital. I was discharged from the hospital last week, exactly 15 days after getting there, which is quite remarkable given that I’d been told my stay would be about three to five weeks.

Read More


Report From the Cancer-Treatment Trenches: It’s Bad Out Here!

By Jason Carpenter | March 4, 2008

Jasoncarpenter_2

In late February, after an emergency admission to a New York City hospital for neutropenic fever—fever associated with low white blood cell counts in many cancer patients—Jason prepared for the harvesting of his stem cells. This phase of treatment for multiple myeloma involves harvesting stem cells, then blasting the patient with high-dose chemotherapy to kill the cancer cells. As the Multiple Myeloma Research Foundation explains: “Because high-dose chemotherapy also destroys normal blood-producing stem cells in the bone marrow, these cells must be replaced in order to restore blood cell production.”

Today Jason e-mailed us here at Health.com with a report on day 8 of the chemo/stem-cell process. We left in the typos because they dramatically illustrate the effect of treatment on this professional writer. You can also see his most recent video diary entry at the bottom of this post.

I’m currently in day 8 of my transplant. I have not felt well at all, and I’m having a time tpying right now. So I aplogozie for the mistakes. They’ve got me quite druggedd up and my body has been so fatigued and naseous. I throw up all day long. Its so bad, they’re now going to be giving me medicinal marijuana in pill for. Wild, right? It’s definitely something to blog about—and I’ve tried, but my body isn’t cooperating. I will continue to collect my thoughts and experiences, but i think until my white blood cells go up (they are currently at 200 instead of 10,000, i’m still going to be a little incoherent

Read More


Am I Fit Enough for a Stem Cell Transplant?

By Jason Carpenter | February 4, 2008

In anticipation of the looming autologous stem cell transplant for my multiple myeloma, a lot of planning and testing is happening—a kind of countdown to the big launch. On the personal front I’ve made a visitor calendar so friends and family can sign up to take turns looking after me during the process. I’ve also made an appointment at the sperm bank.

Meanwhile the whole transplant machine is furiously busy. Doctors have me going through more tests than a chess-playing idiot savant. They want me healthy enough to go through the stem cell transplant process, which can sap energy and open you up to infection and illness.

Read More


Is My Cancer in Remission or Not?

By Jason Carpenter | January 21, 2008

cancer-remissionNot long ago I got the good news from my oncologist: The five cycles of cancer treatment I have undergone have pushed me into complete remission. That made me feel great until my next day with the transplant doctor whose care I will be under for the next few months, including my autologous stem cell transplant. “There’s still some disease in your blood,” she said pleasantly.

I considered body-slamming my other doctor.

Whom am I supposed to believe? Do they want to see my head explode, or watch me go on a maniacal rampage?

Read More


Now They Say I May Become Impotent

By Jason Carpenter | January 16, 2008

SpermsamplecupIt never occurred to me that getting bone marrow cancer would lead to me holding a little Dixie cup while watching XXX videos in a hospital, but that’s exactly where I’m going to be in a few weeks.

It’s not easy to talk about as a guy who fancies himself quite the alpha male. Anyway, I’m now about six months into my treatment and have already put five really difficult cycles of side-effect-riddled medicine behind me. I’ve twisted the doctors’ arms into agreeing that I am in remission (even though there’s a tiny amount of cancer still remaining) and I’ve managed to work myself into a semi-healthy state of mind.

Read More


An Unexpected Side Effect of Cancer

By Jason Carpenter | January 7, 2008

Pilldispenser250For the better part of my 34 years on Earth, I’ve been that guy with the messy desk and disorganized closet, who never used a planner, who crammed his brain with stuff he couldn’t possibly remember.

But cancer changed all that, and I can’t control it.

It’s not the cancer itself, but the intense discipline it takes to be a cancer patient. I take up to 25 pills a day, some on alternating days and some only once a week in a huge dose. I have so many bottles that I have a special box for them.

Read More



Previous Cancer Diary Stories


Continuously updated headlines delivered right to your computer

Advertisement
Close
E-mail It
Powered by ShareThis